Journal created:
on 23 July 2003 (#1204119)
Updated:
on 4 April 2023
Name:
CFIDS and M.E. Support
Membership:
Open
Posting Access:
All Members
Description:
A support group for Chronic Fatigue Immune Dysfunction Syndrome and Myalgic Encephalomyelitis
Welcome. This is a community for people dealing with Chronic Fatigue and Immune Dysfunction Syndrome and Myalgic Encephalomyelitis (also known as Chronic Fatigue Syndrome), friends or family members of those who are dealing with CFIDS/ME, or anyone who wants to learn about this very real illness. All PWC's (persons with CFIDS) and those who love them are welcome here.
This is a safe place to talk about struggles, celebrate victories (no victory is too large or too small), discuss coping strategies or treatments and meet others who know what it's like. Please post your own stories, or pass on information or links you feel might be helpful for others.
General community guidelines:
- Flaming, personal attacks and drama will not be tolerated. Please be respectful when posting and commenting. If you cannot refrain from rudeness or unhealthy debate, please take it to email. If there are any problems regarding this that need to be brought to my attention, contact me.
- The only content rule is that all posts pertain to CFIDS/ME in some way. Off-topic posts don't belong here.
- If your post is considerably lengthy, please use the LJ-cut (as explained here) as a consideration for readers.
- Please do not use flashy text colors or change font sizes. This makes posts difficult for some people to read the content.
- Before promoting a community or web site, please contact me first.
If there are any questions, concerns or comments about anything pertaining to this community, please contact me:
dahliablue.
Community Memories can be found here.
Two Must Reads:
An Open Letter to those without CFS ...
The Spoon Theory is a great way of explaining what it's like to live with a chronic illness. A must read for those who want to understand more about what it's like to be ill.
Resources & Links (Please send me any suggestions for links you find helpful.):
Want to search the posts in the community? Use this search engine tool:
Other LJ Communities you might find helpful:
fibromyalgia
me_cfs_severe
cfs_fibro_ideal
disabldpetownrs
invisiblefm
This is a safe place to talk about struggles, celebrate victories (no victory is too large or too small), discuss coping strategies or treatments and meet others who know what it's like. Please post your own stories, or pass on information or links you feel might be helpful for others.
General community guidelines:
- Flaming, personal attacks and drama will not be tolerated. Please be respectful when posting and commenting. If you cannot refrain from rudeness or unhealthy debate, please take it to email. If there are any problems regarding this that need to be brought to my attention, contact me.
- The only content rule is that all posts pertain to CFIDS/ME in some way. Off-topic posts don't belong here.
- If your post is considerably lengthy, please use the LJ-cut (as explained here) as a consideration for readers.
- Please do not use flashy text colors or change font sizes. This makes posts difficult for some people to read the content.
- Before promoting a community or web site, please contact me first.
If there are any questions, concerns or comments about anything pertaining to this community, please contact me:
dahliablue.Community Memories can be found here.
Two Must Reads:
An Open Letter to those without CFS ...
The Spoon Theory is a great way of explaining what it's like to live with a chronic illness. A must read for those who want to understand more about what it's like to be ill.
Resources & Links (Please send me any suggestions for links you find helpful.):
- What is CFS/CFIDS/M.E.?
- The CFIDS Association of America
- Co-Cure
- Immune Support
- The ME Association
- ME/CFS Parents
- RemedyFind
- CFIDS at About.com
- Association of Young People with M.E.
- The 25% M.E. Group, for the severely ill
- PatchWorx: An Online Community for Chronically Ill Youngsters
- Action for M.E.
- CFS Research
- CFS Information Sheet
- The Fibromyalgia/Chronic Fatigue Syndrome Foothold
- SupportME (UK)
- Irish M.E. Trust
Want to search the posts in the community? Use this search engine tool:
Other LJ Communities you might find helpful:
fibromyalgiame_cfs_severecfs_fibro_idealdisabldpetownrsinvisiblefm advice, allergies, alternative medicine, alternative therapy, anti-depressants, auto-immune disorders, autoimmune, being sick, brain fog, cfids, cfs, chronic fatigue, chronic fatigue syndrome, chronic illness, chronic pain, cognitive problems, coping, coping skills, depression, disabilities, disability, doctors, emotional support, fatigue, fibromyalgia, fms, gulf war syndrome, health, hidden disability, illness, insomnia, invisible illness, irritable bowel syndrome, m.e., medication, mobility problems, multiple chemical sensitivity, myalgic encephalomyelitis, myofascial pain syndrome, pain, pain management, physical therapy, relaxation techniques, research, restless leg syndrome, specialists, stress management, support, tests, therapy, weakness
