November was another eventful month for us. I'm putting it into 2 posts because so much happened that month....unless I babble on too much, then it might end up being 3 posts....
I started the month off in the hospital again. After my lung collapse in August I was having a really hard time getting my lung function tests back up to where they were before (my baseline before was around 34-37% FEV1 & afterwards I couldn't get it above 30%). Myself & the CF team were starting to think a little more about the possibility of me getting a lung transplant w/in the next couple of years. It was also hard for them to say whether it was time or not to look into it because you need to have a baseline FEV1 & we didn't really know what mine was. We decided that since I still didn't feel the greatest & we didn't really get to do an aggressive CF exacerbation "tune-up" like we had planned in August, that I should go into the hospital for 2 weeks & get the aggressive medical treatment that I needed. The other purpose of the visit was to establish what my true FEV1 level was. I ended up going into the hospital on Halloween, which wasn't a big deal to me. The only bummer was that I forgot to bring the candy we had a home & for some reason no one had any candy that day at the hospital. :(
This was a visit full of emotional ups & downs. Mostly just for me personally. Part of the ups & downs was due to Curtis being extremely busy with work & school. I failed to mention in previous posts that after Curtis got released as Scout Master back in August that he then decided to take a class down at BSU. It was a power electronics class that he had been wanting to take & the time worked for his schedule & it was his favorite professor that was teaching it & since he didn't have a major scout calling he could devote time to the class & still have time for family. Curtis had passed the engineering licensure exam the year before & in order to keep his license he needs to have 30 professional development hrs every couple of years. By Curtis taking this class it would fulfill those requirements for a couple more years. Of course after he signed up for the class my lung collapsed...but we both decided that he should still continue with the class, so he started his class 2 nights a week, a week after my collapse. That was a busy time for us....well at least for Curtis. He had a big project for the class that was due the beginning of November. He did work on it off & on before it was due, but still had a majority of it to do in the final week before it was due. Curtis ended up taking about 3-4 days off of work so that he could work on his project, he spent a few late nights at the engineering bldg w/some of his classmates, got a last minute 2 day extension on the project & FINALLY finished it just a few hrs before it was due. This whole project was hard for me because I couldn't help him on it & I was sacrificing my time with him by encouraging him to work on it (or go home & get some sleep) so that then when it was done we could enjoy our time together.
Some other things that made this stay emotional was the fact that Sam & Justin got engaged & she took Mom, Nicole, Brenda, & Justin's Mom, sister, & grandma to go & pick out her wedding dress. Don't get me wrong...I was EXTREMELY HAPPY that she got engaged. I knew it was coming. I was also the 1st one to know about it after he asked her because they came up to visit me & to show me the ring. It was just hard because she is my sister & one of my best friends & I was looking forward to doing all of the "wedding planning & excitement" with her & I was missing it because I was in the hospital. (She was able to get a super good deal on her dress the 1st day that she went looking, which is the only reason why she bought it the day she did...so I don't blame her for not waiting for me) I also missed Brenda's birthday that week & besides Sam, Brenda is the one that LOVES her birthday the most & it still really means something to her, it's exciting & fun. Brenda was pretty sad that I couldn't do something fun with her for her birthday, but we did get to do something after I got out of the hospital, so she was ok with it. :)
I was also an emotional roller coaster that week because 1-it was that time of the month (probably TMI, but honestly sometimes it explains a lot) & 2-I had to stop taking my Celexa because of one of the antibiotics that I was on (bad side effects if taken together). I started to take Celexa back in June 2011. I had been fighting depression for over a year & I finally had decided to do something about it. Depression is a normal thing for someone that has a chronic disease & who experience major changes in their daily living (like no oxygen during the day to wearing it 24/7, just one example). Thankfully just a small dose was all I needed to help boost my mentality & energy. When I went off of my medicine for those 2 weeks (& it could have just been bad timing by us) I would be fine & happy one minute, & the next one I would be annoyed or upset & crying the next minute. Depending on who was around I was able to hide the fact that I was struggling. Thankfully I had a few angels in my life that week who let me cry, laugh, talk & cry some more & knew just what to say to help me. (a Dr, nurse, RT, friend from church, & my BFF!) This was the same week that it really hit me that we needed to start looking into getting a lung transplant. Like I said earlier, at this time the CF team was still split on whether we really needed to start looking into getting a lung transplant or not. I LOVE my Boise CF team, they are amazing! But they are also human & have different personalities & approaches to medicine (GI doc compare to family medicine doc)....which is good because one may find something that the other misses, but sometimes it's hard to know which one to listen to when they all have different approaches & opinions. Thankfully I have a good relationship with all of them & I'm not afraid to ask questions & advocate for my own health care & they are not afraid of talking to me or listening to me or working with me to find the best solution. Anyway, the whole reason behind mentioning the Celexa/depression thing was because it was the first time in a while that I had cried & realized just how bad my CF was & that I might not actually live another 3-5 yrs. Thankfully we have the downs so that we can enjoy & remember the ups even more & learn from them. :)
Ok, enough of the depressing part of it. On to the emotional ups! Of course the first one was Sam & Justin getting engaged. Another one was having one of my good CF friends in the hospital room right next door to me during 1/2 of my stay. Christian & I knew each other from CF camp years ago. When he was on his mission I started school at BSU, & I met Kendra & became good friends with her. They met each other after his mission & soon got married. They are an amazing couple! They always make me laugh! :) We spent many hours that week talking with each other about everything from hospital food to football to spiritual topics & more. We even had the radio on out in the area outside or rooms so that we could both listen to the BSU football game that was only on the radio (unless you had a special cable channel or had a ticket to the game that was just a mile away from the hospital...really annoying!). It really helps to have CF friends. Our disease is very similar but VERY different at the same time. It's so nice to talk to them & I don't even have to explain anything because I already know that they "get it", all of the dr visits, medication, insurance stuff, medical mysteries & more...they understand all of it. Anyway, it was a lot of fun that week & they helped me while Curtis was so busy working on his project for school. I love the Hooper's! :) Among some other emotional ups for me was that I was able to finish my cross stitch of Sunshine Bear (or is it Funshine Bear...can't remember). I was making it for Shasta. She then surprised me by coming & visiting with me in the hospital for 4-5 hrs. Shasta lives in Mountain Home, which is about an hour away from Boise, & she stayed until after 12 am! It was a blast! We laughed, we cried, & we laughed some more. Seriously, you get the two of us together & we can't stop laughing & we are loud. Some of the nurses & RTs thought that I was having a party in my room & couldn't believe that it was just the two of us making all that noise. :) Yes, laughter is good for the soul!!! I also have to say that I do LOVE my husband & he is my BEST friend, but sometimes a girl just needs to have another girl to talk to, to make everything better & Shasta is the one! We often refer to each other as our twin because we are so much alike. Even though we didn't get to be blood related sisters, we are forever sisters & friends & we're thankful that Heavenly Father put us together as friends. Other emotional ups included visiting with family & friends from church & working with & getting to know all of the many nurses, RTs, & CNAs. They are amazing!!!!
So overall the hospital stay was a success. I started to feel a little better & we were able to determine that my baseline FEV1 was around 30%. 14 days is a long time to spend in the hospital & I was ready to get out & get through the holidays & on to Sam & Justin's wedding. But first some pictures:
The Ring!!! Beautiful!!!
An "Eddible Arrangement" that was VERY YUMMY!!
Thank you Christian & Kendra! :)
The finished Care Bare project. I love it!