28 Februaryis Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.
Share your colours Download Info Pack300M
people with rare diseases
600+
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106
countries involved
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Diagnóstico não é destino
Mariah nasceu sem nenhuma intercorrência, saudável. Porém, desde muito pequena, sentia muitas cólicas, chorava quase o tempo todo e, com o passar dos meses, começamos… Continue reading Diagnóstico não é destino
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Body Bound by Earth, Mind Master of the Cosmos: My journey with LGMD2R
My name is A. Sabesan. I am 25 years old, living in Chennai, Tamil Nadu, India. Up until the age of 18, my life was… Continue reading Body Bound by Earth, Mind Master of the Cosmos: My journey with LGMD2R
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Vivir con Guitelman o sobrevivir a el
Desde muy chica , senti siempre el corazon en la boca, siempre me dolieron las piernas, siempre tuve mucha sed, creci, tuve hijos era mas… Continue reading Vivir con Guitelman o sobrevivir a el
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Thousands of events
in over 100 countries
Every year, thousands of events are
organised across the world.
IN THE NEWS
Experiences from Georgia and Portugal show how patient organisations and teachers are adapting the Rare Disease Day School Toolkits to their own communities, what they… Continue reading How schools are bringing rare disease awareness to life
On 28 February 2026, Rare Disease Day will once again bring together millions of people worldwide to spotlight the realities faced by those living with rare diseases and… Continue reading Rare Disease Day 2026 highlights global inequities and amplifies youth voices in call for lasting change
Living with a rare disease means navigating stigma, isolation, and uncertainty. For young people, these challenges are compounded by the pressures of growing up, starting… Continue reading Raising Youth Voices 2026: Shaping the Future of the Rare Disease Community.
