@AlliancetoCure

AlliancetoCure has been a member of Linktree for 4 years and joined in January 2022. The social media accounts linked to from AlliancetoCure are: • Facebook • YouTube • LinkedIn • Email Besides social media accounts, AlliancetoCure has populated their site with: • Donate Today! • Shop Alliance to Cure Cavernous Malformation • Shine Bright - Alliance to Cure Cavernous Malformation • Strides to Cure 2026 • ALLIANCE TO CURE - 2026 CCM Family Weekend • Alliance to Cure Website • Swinging for a Cure Golf Tournament - San Marcos, CA • Elle's Story • Share your CCM Story • Courage to Persevere | Shop Alliance to Cure Cavernous Malformation • Webinar: Eloquent Online Group Viewing • Study Summary: Is Clot-Busting Stroke Treatment Safe for People with Cavernous Malformation? - Alliance to Cure Cavernous Malformation • Buy Bravely Bleeding: A Powerful Dual Perspective Memoir • ANGIOMA ALLIANCE - 2026 Fore! A Cure Golf Tournament • ANGIOMA ALLIANCE - 2026 Chip-in for a Cure • Understanding the Research: How Organoids Help Scientists Understand CCM Proteins - Alliance to Cure Cavernous Malformation • Join the community virtual roundtable • Her life remains ‘a work in progress’ after a stroke at 30 – and she wants to inspire others | American Heart Association • 2nd Annual Rocking for a Cure • Understanding the Research: Long-Term Outcomes of Untreated Cerebral Cavernous Malformations - Alliance to Cure Cavernous Malformation • CCM Care: Neurology, Seizures and Hormonal Considerations Webinar • Breaking Down the Risks: Seizures and Brain Bleeds in Familial Cavernous Malformation - Alliance to Cure Cavernous Malformation • Volunteer Interest Form • Care Partners’ Hour - Supporting the Supporters. • HuffPost Article - A Dad Tried To Bully Me Into Giving My Seat To His Kid. Here's What Happened When I Said No. • New Mexico Patient, Family, & Provider Conference • CCM Care Guidelines - 2025 Update • Patient Stories - John Andres • CCM Connect • Patient Navigation • YouTube Channel - Alliance to Cure Cavernous Malformation • Sign Up for Updates! • Current Research • Patient-Expert Certificate Program • Webinar by Connie Lee-Gentics and You • ThursdayZoom Support Group • Cavernous Malformations And Children • Imaging • Types of Rehabilitation • Online Community • Member Blogs/Books/Stories • Amy's Story: I thought it was just a headache... • Cat K.'s Patient Story • Jeffrey was battling his rare genetic brain condition on his own. Then he discovered an overseas 'family' • Brian's Cavernous Malformation Story • Preparing for Surgery • Dr Brown's Cavernous Malformation Story • Olmsted Falls teacher’s medical emergency brings out the best in her students • Esperanza's Cavernous Malformation Story • Alliance to Cure Swag • Biscochito - A Children's Book about the familial form of Cavernous Malformation • The CCM Program Project Grant: An NIH-funded research success story • Endothelial TLR4 and the microbiome drive cerebral cavernous malformations - Nature • $3.1 Million Grant Backs Promising Focused Ultrasound Research • Mother and son with brain tumors raise awareness by selling mistletoe • A Cure is Within Our Reach - Connie Lee's Year End Address • Focused Ultrasound Foundation • Alliance to Cure Cavernous Malformation Receives $25,000 Grant from Kohl’s National Giveback Initiative • Lurie Children's Hospital recognized as CCM Clinical Center • Alliance to Cure Breaking Barriers program wins Justworks grant award • Practical solutions for caregiver stress • Video: ‘Beyond the White Lines: The Ryan Westmoreland Story’ • Emily's story - left temporal lobe cavernoma • After a Rare Diagnosis and Brain Surgery as a Kindergartener, Kai Makes a Remarkable Recovery - Florida Hospital News and Healthcare Report • The Baca Family Historical Project • Cavernous Malformation and School • MRI Guided Ultrasound with Delaney Fisher • Patient Stories • Interested in Hosting an Event? • Gut Health and the Microbiome • Recursion’s Phase 2 Trial for the Treatment of Cerebral Cavernous Malformation has Fully Enrolled | Recursion Pharmaceuticals, Inc. • Quarterly Newsletter • Positively JAX: Dance instructor shares rare health condition battle through dance routine • Recursionauts Series: Connie Lee • NORD Abbey S. Meyers Leadership Award Presentation • Alliance to Cure Cavernous Malformation Recognizes Thomas Jefferson University Hospitals as a CCM Clinical Center • Patient Registry • Alliance to Cure Cavernous Malformation Recognizes Beth Israel Deaconess Medical Center as a CCM Clinical Center • Participate in Clinical Trials • CCM Clinical Care Guidelines • With a little 'tickle,' a new technology gives hope to stroke patients with paralysis | CNN • Centers of Excellence • Clinical Trial FAQ • CCM Healthy Cookbook, 3rd Edition • "I found the love of my life, years later we made a shocking discovery" • Ryan Westmoreland, whose baseball dream was struck down by brain tumors, inspires as a student at Northeastern • Webinar-Headaches and Pain Management • Eloquent • Surgery for Intracranial Cranial Cavernous Malformation with Dr. Lanzino • Rare × 2 = ? What having twins with a rare condition teaches you about people • Webinar-Dr. Awad: Cavernous Malformations and the Aging Brain • Duke University Hospital Named Center of Excellence • Alliance to Cure Cavernous Malformation (Cavernous Angioma, Cavernoma) | Facebook • Common Mutations • 20 Questions Answered • Fatigue • Feelings Parade: Vulnerable Songs from the Deep Hearts Core • Webinars and Conference Presentation Videos • Eloquent (trailer): A Documentary by the Alliance to Cure • Telling a Story of Healing Through a Child's Eyes • Alliance to Cure Cavernous Malformation Recognizes Stanford Health Care as a Center of Excellence • UCLA Named CCM Clinical Center by the Alliance to Cure Cavernous Malformation • Webinar: Let's Talk About Emulsifiers • Dr. Lawton: Surgical Advances • Spinal Cord Lesions • Research Around the World • Recursion Announces Enrollment of First Patient in Phase 2 Trial for the Treatment of Cerebral Cavernous Malformation • The Spark for Decoding Biology: An Origin Story • Genetics of Cavernous Malformation • Mishawaka 10-year-old shares his story of life with epilepsy after surgery to stop seizures • Dr. Awad Presents a Trial Update and Q&A Session • Parents of Children With Rare Diseases Aren't Superheroes • Seizures • Unique contribution of one patient advocacy organization in advancing cerebral cavernous malformation awareness and research • 16 years Living with a Rare Disease – Cavernoma – Rare Disease Day 2022 • Breaking Barriers • Questions to Ask Your Doctor • Four years after brain surgery, 9-year-old Crestview girl is thriving | crestviewbulletin.com • How a Rare Brain Mutation Spread Across America • ‎BLACK HEALTH LIT: Breaking Barriers to Rare Disease Diagnosis on Apple Podcasts • Join or Mailing List! • Who is Alliance to Cure Cavernous Malformation? • Treatments in Development • Dr. Mark Kahn, Univ. of Pennsylvania, "Recent Microbiome Research Progress" National Conference 2019 • Angioma Alliance Receives $600,000 Award from the Chan Zuckerberg Initiative to Advance Rare Disease Research • Volunteers Urgently Needed for CCM Health-Index Survey • Volunteer • Genetics of Lesion Development • The Brainstem: Why is it so sensitive?