Supporting Families, Saving Lives.
A new diagnosis or cardiac event can change everything in an instant. We've spent decades making sure that moment leads somewhere: to answers, to community, to a path forward.
Every rare heartbeat detected, protected, and heard.
How can we help you?
The Foundation for Inherited Arrhythmias (FIA) is a community of families, medical experts, and supporters saving lives and advancing care for all those affected by genetic heart rhythm conditions, including channelopathies and arrhythmogenic cardiomyopathies.
Seeking a diagnosis
Something doesn't feel right, or you or a family member has had a scary episode. We can help you find answers.
Dealing with loss
For families navigating life after losing someone to an inherited heart condition, or to a sudden death that was never explained.
Newly diagnosed
You just found out. We know it can be overwhelming. Start here.
Navigating care
From first symptom to everyday questions, we can help you on your heart journey.
Our Goal
A cure for inherited arrhythmias in our lifetime.
Our Impact
Individuals and families supported one-on-one
Research study partnerships
Years of supporting families and saving lives
Our Mission
To improve care, accelerate cures, and empower everyone affected by inherited arrhythmias to live fully and thrive beyond diagnosis.
Inherited Arrhythmia Conditions
Inherited arrhythmias are heart conditions which run in families (genetic) and can cause dangerous heart rhythms that raise the risk of sudden cardiac arrest. With the right diagnosis and care, that risk can be managed. The conditions listed below are the ones we focus on the most: they are often genetic and they put people at risk for dangerous heart rhythms (arrhythmias).
Not yet diagnosed or looking for answers?
Who we serve
Affected individuals & families
Resources, community, and guidance for living with inherited arrhythmias.
Healthcare professionals
Clinical tools, referral resources, and CME for HCPs managing inherited arrhythmia patients.
Researchers
Registry access, research collaboration opportunities, and grant information.
News & updates
.jpg)
.jpg)
Community stories
Alexis
After her long QT syndrome diagnosis was missed for a year, Alexis continued dancing while navigating medications, devices, surgeries, and hope for new treatments.
.webp)
Matt
After surviving sudden cardiac arrest at rehearsal, Matt rebuilt his life, identity, and career while learning to live safely with ACM and an ICD.
.webp)
Jadale
Jadale survived sudden cardiac arrest, found the right CPVT treatment plan, and became a D2 shotput and discus athlete.
Mila
After her daughter's Brugada diagnosis, Mila turned fear into action – raising awareness, finding expert care, and helping her daughter live a full life.
Join the FIA Care Tool
Take charge of your care.
Joining our FIA Care Tool is free, helps you gather your medical records, and empowers you to better navigate your care journey.
Key medical research partners
