The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure.
$7 million in total research funded that is resulting in fewer patient fatalities and more effective treatments.
to 19,500+ physicians, patients, families and friends since the organization began in 1986.
We connect patients and families through meetings and events, and connect physicians through the Histiocyte Society.
We promote new and emerging treatments through the funding of clinical trials and studies.
“I naturally gravitated to the literature and sought out resources, including the Histiocytosis Association in order to learn more about why LCH occurs, who is impacted, what are the protocols for treating various systems (e.g. bones, GI, skin). In my search for knowledge, I learned that LCH is still not well understood and often cast aside as a “non-cancer” despite being labeled as a histiocytic neoplasm by the National Comprehensive Cancer Network and blood cancer by the World Health Organization.”
– Andrea, a Histio Mom & Ambassador
You Are Not Alone
What do we NOT know about the GENETICS of hemophagocytic lymphohistiocytosis (HLH)?
Histiocytosis & Survivorship Working now, for the future of histiocytosis
HopeCast 2025
Finding Your Way Through Grief Webinar
Histiocytic Neoplasms from Behind the Scope: A Primer on Diagnosing different subtypes
We strive to ensure you have all of the information and support you need, at every step of the way. Explore these resources, or contact us directly at [email protected] or 856-589-6606 for help with any questions you may have.
We cannot make an impact without the help of our Histio Community members like you!
